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our plea for research!
On the day that we put our Samuel~Jack's Birth Announcement into our local paper, the Editor phoned us the following morning to say how sorry all the staff at the 'Newspaper offices' were, to hear that we had lost our second precious baby... The Newspaper had covered our story previous when we had our 'angel~Jack's 1st Birthday Memorial Balloon Release a few months earlier... They were so shocked to hear of us losing our Samuel... They asked the following day if we would be up to doing a 'story' for their paper again... We both didn't feel up to it, but then realised that we were being given another chance to highlight this most devastating disease of 'Potters Syndrome', and so we agreed... The paper did a lovely tribute to our Samuel and recognising the very important fact that ~ 'Research must be done to find a cure for this terrible, terrible Disease'!
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